Psoriatic Disease and the Family

On October 29th the global community of member groups connected by IFPA (International Federation of Psoriasis Associations) will come together to bring a collective voice to act and show support for all those affected by psoriatic disease throughout the world. World Psoriasis Day is observed in over 70 countries to raise awareness of the disease and to rally support from families, communities, health systems and governments. In 2024, the theme is FAMILY. Living with psoriatic disease can be tough for both the person affected and their family members. It’s important to recognize that the challenges don’t just impact the individual but also their family.  It is estimated that at least 60 million people live with psoriatic disease, but we know that many more are affected by it. In that group, we can include family members, such as parents, siblings, children, partners, and caregivers, also known as the Greater Patient, in the life of those affected by psoriatic disease.

Inside Psoriatic-Disease Family Report – https://cms.ifpa-pso.com/uploads/Inside-Psoriatic-Disease-Family-Report_2024-09-03-090050_xdlf.pdf

Despite several studies reporting a significant burden of psoriatic disease on the family, there is a general lack of understanding of the real impact on their lives. Family and partners not only have an emotional support role but also help with everyday tasks and treatment. This, however, comes with a cost for their own wellbeing that is not discussed enough.

 

Every World Psoriasis Day, the IFPA community aim to: Raise awareness United, we raise the profile of psoriatic disease and increase awareness of the effect it has on an individuals life

Spread information For many, psoriasis is still a relatively unknown disease. United, we dispel common myths and answer questions.

Speak up as a strong psoriatic disease community United, stunning progress can be achieved.

Drive political action United, we empower governments to step up their efforts to provide better access to appropriate and affordable treatment